过敏与治疗杂志

抽象的

Meeting Patient Needs in Hereditary Angioedema Care

Autumn Ford Burnette

Hereditary angioedema (HAE) is a rare, chronic disease that causes recurrent episodes of severe swelling in the face, airways, limbs, and intestinal tract. Recent advances have provided HAE patients with more treatment options. My research and the work of others have investigated patient preferences and perspectives on available HAE prophylactic treatments. Increasing numbers of patients are taking prophylactic medication for HAE (primarily injectable) and most are satisfied with their current treatments. Nonetheless, as alternative treatments become available, their preferences may shift, with many patients expressing a desire for alternative routes of administration. Healthcare providers should have an ongoing, open dialogue with their patients regarding which HAE treatments are best for their needs.